Rare inflammatory condition keeps boy from eating - AmericaNowNews.com

Rare inflammatory condition keeps boy from eating

It may not seem like a big deal for a 7-year-old like James Delano to munch on potato chips for an afternoon snack, but it took years just to get to this point.

"The first time I had it, my tummy hurt and my chest," said James.

Since he was three years old, James has had problems with the way food makes him feel.

"James' primary symptom is chest pain and he just, his chest pain continued daily, multiple times a day and then they described it to us like he's feeling a heart attack," said his mom, Victoria.

At first his parents thought it was a virus that wouldn't go away.

"We were so alone in the beginning trying to figure out what his diagnosis was and where to go for the right treatment," Victoria recalled.

It wasn't until almost a year later that doctors finally diagnosed James with something called eosinaphillic esophogitis. It's an inflammatory condition where the wall of the esophagus becomes filled with large numbers of a type of white blood cell that causes chest pains.

At first, doctors tried steroids. That didn't work.

Next, they tried eliminating foods with top allergens. Still, James kept experiencing chest pains.

That's when the decision was made to swap out solids for a feeding tube.

"We knew that it was time and James knew it was time," said Victoria. "James was done he didn't want to eat anymore because it was just making him feel so bad."

About 16 hours a day, James and "Spiderman" are connected, the majority of his nourishment coming from the machine.

"It was like we had finally met our child for the first time in years," Victoria recalled.

After four months of a new kind of normalcy, it was time for solid food to come back in the picture.

But trying a new food is different for James than it is for most people.

In order for the food to pass the test, James has to eat a certain amount for at least a month. He then has to have an endoscopy and biopsies.  After four years, he's up to only six safe foods: Carob, ham, broccoli, potato chips, grapes and quinoa.

"I just have to sit with these ingredients and figure out what I'm going to do with broccoli and pork and grape," said his mom.

It may sound like a Food Network challenge, but for this family it's their usual routine. And it's one they'll continue day in and day out until a cure is found.

Copyright 2012 America Now. All rights reserved.

  • Most Popular StoriesMost Popular StoriesMore>>

  • Fugitive Friday: Central Virginia's Most Wanted

    Fugitive Friday: Central Virginia's Most Wanted

    Friday, August 29 2014 10:04 AM EDT2014-08-29 14:04:54 GMT
    Fugitive Fridays tracks down Central Virginia's most wanted. Take a look at the photos and see if you can help police track down these suspects.
    Fugitive Friday helps track down Central Virginia's Most Wanted.
  • Six deadly foods for dogs

    Six deadly foods for dogs

    Every pet owner knows a dog can get into just about anything around the house. One woman found that out the hard way when her dog ate a bunch of grapes! Turns out, that's one of the most dangerous foods
    Every pet owner knows a dog can get into just about anything around the house. But these common snacks could be fatal for Fido.
  • Physicians warn against giving melatonin to children

    Physicians warn against giving melatonin to children

    Parents desperate to get their troubled sleepers to bed are turning to synthetic melatonin, which is a supplement sold over the counter. But expert warn it could have adverse effects on child development.
    Many adults turn to sleep aids like melatonin, but now more parents are giving them to their kids, too. We talked to physicians to see what they had to say about how it could affect your child's development.
Powered by WorldNow